Makes me excited that we can help from afar and that half of the funds will once again go to help kids with BBS.
I love what my friends with BBS kids have done to help raise funds to help in the cause. Check it out HERE.
Nothing can really prepare you to get a phone call from the geneticist telling you that your child has a really rare syndrome that will change her life, and that…
I am going to see if I can start to stay a little more up-to-date around here. Like, let’s talk about what happened this last weekend. Started out with Lucy…
Last month I got to go visit with Lucy’s Braille teacher at the school. We had only emailed up until then and from the first email I knew that I…
When Lucy’s choir teacher asked me a few weeks ago to tell him more about what’s going on with Lucy, I realized we needed a little teacher meeting. Knowledge is…
School is out here in the desert. The last day was the day before Memorial Day weekend. So let’s talk for a minute about my hero Lucy. Let’s talk about…
I was talking to a friend the other day. A friend who also has a teenager with some special needs. It was so good to be able to relate on…