With the help of the BBS community we’ve figured out a way to make those funds work specifically for BBS kids through starting the clinical registry that helps researchers help our kids. Much more on that over HERE. Last year we were in China and weren’t able to coordinate the BBS side of the Turkey Trot as well as we wanted to, so we’re excited to run with it this year, as other families have done through their own family fund raising (more about those efforts HERE). Our good friends in the BBS community just held a great golf tournament to raise money and others are joining the cause. I loved this great thank-you video they did after the tournament:
All of us BBS families know that vision research, especially the pin-pointed kind we need, takes funds. Lots and lots of them.