ooop, here’s another great blurry pic:
But look how excited that girl is? Had to include it.
It’s about the Marshfield Clinic.
Dr. Murali was one of my favorite doctors we met at the Clinic way back in 2013:
She was extremely helpful and bright. It was fun to meet her husband and catch up with her at the dinner. They have a 12-year-old child who scored a 36 on the ACT test. I’m just saying. Wow.
At the dinner my friend Mary and I were talking about a new family who has children diagnosed with BBS right in the same area. We planned to get together as soon as possible to meet this new mom we had been told about who was trying to grapple with this new diagnosis.
Ok, so let’s get back to the Bubble Run.
Elle had an all-day tennis tournament at the same time but Lucy really wanted me to come watch her run (as did Claire) and of course I wanted to be at both so I was kind of rushing. But I got there in time to catch the excitement of it all.
A few minutes after I arrived a lady I had never met came and introduced herself. My brain was scrambling to figure out where I had heard that name as I stood there in that swirl of excitement and activity.
And then I realized who it was: This was the lady Mary and I had heard about who recently had two children diagnosed with BBS.
Right there at our elementary school.
Her kids didn’t even go there but she happened to be there helping with the Bubble Run right at the same time I swooped in from the tennis tournament. We just stood there in amazement that we happened to meet up right then and there.
We talked for a while…she has one child diagnosed with BBS and another waiting for test results. That’s a scary time. I remember it so well (see my post when Lucy got diagnosed HERE). The world is dark for a while when you find out something that will change life so much. And there are a lot of roller coater emotions that never stop after that. We exchanged information and planned to get together soon.
That weekend another BBS mother friend texted that she was in town from Utah and wondered if we could get together. The stars aligned just right so that both these great families could come over for a morning visit at the same time.
I loved it. Love that it was when my mom was here too…see her up there on the right?
Claire was pretty excited to get together with this cute non-BBS-affected sister who she met last year in Utah (back HERE).
I was pretty excited to get together with these wonderful ladies:
Lauren, the little girl next to her, and her older brother, are the only other BBS children she has ever met (last summer) so she was so excited to see her again and to meet little Rachel too.
So, there are my two drawn-out stories to lead to this wonderful one of love and companionship that we are so very grateful for in the BBS world.