Makes me excited that we can help from afar and that half of the funds will once again go to help kids with BBS.
I love what my friends with BBS kids have done to help raise funds to help in the cause. Check it out HERE.
Remember when it was the first ever Global Awareness day for BBS? (Yeah, if you don’t, I wrote about it back HERE.) Well, we have our own little local BBS…
My dear Mom designated herself to became “the researcher” on everything we can possibly do to help Lucy ever since we got her diagnosis two years ago. She hears things,…
I’m so grateful for all the things available in this day and age for a kid with a syndrome. (If you are new to this blog, I have written about…
…a day late… I was wondering if there was an update on the donations for the I love Lucy project that you initiated last fall? Somehow I couldn’t find it…
At the end of June I sat for three days in this room (and in some break-out rooms) with these wonderful people: …listening to doctors and researchers explain slide after…
We have lots of Braille going on around here these days. Lucy has been learning it in school for the last couple years. You know how I said I…