Makes me excited that we can help from afar and that half of the funds will once again go to help kids with BBS.
I love what my friends with BBS kids have done to help raise funds to help in the cause. Check it out HERE.
When Lucy’s choir teacher asked me a few weeks ago to tell him more about what’s going on with Lucy, I realized we needed a little teacher meeting. Knowledge is…
Remember when it was the first ever Global Awareness day for BBS? (Yeah, if you don’t, I wrote about it back HERE.) Well, we have our own little local BBS…
Two different stories merge into one right here. At first they may not seem BBS-friend related but just wait for it 🙂 First: Last year we had a pretty spectacular…
I love good doctors. Yes, I have had some trouble with some doctors in the past. There was the one who took a phone call on his cell phone from…
I’m so grateful for all the things available in this day and age for a kid with a syndrome. (If you are new to this blog and want to know…
Ok, really “two days” in the life, but from the time we leave to the time we get back it really is close to 24 hours. We do these visits…