lucy

I think it’s so true that people who can’t see can “feel” more. Lucy can feel music so beautifully. She can’t see sheet music these days. So I think I’ve mentioned before that her awesome piano teacher uses a huge staff and writes out music for her to read. But…

Last weekend, in the midst of all the Nationals and prom hoopla, Lucy had her own big things going on. I promise we don’t always have things to get dramatically emotional about around here, but this last weekend we had a few of them. And Lucy’s MCO choir performance was…

When I was sixteen years old I was able to receive my Patriarchal blessing. It’s a special blessing you can choose to receive any time, and it gives guidance and direction from God. And yes, maybe that seems strange to someone who hasn’t grown up in the church, but I…

I am learning more and more about the “labor” part of the term “labor of love.” Because after we were singing glory hallelujah when Lucy finally accepted the idea to go to a class at The Foundation for Blind Children (and even had a good time…back HERE), I really thought…

I posted that Lucy’s basketball season was all wrapped up back HERE. But that actually wasn’t true because a sports season is never really wrapped up until the final banquet, right? So let’s just enjoy these sweet pictures my friend sent me from that big night. Sweetest friends. Sweetest coach.…

Just wanted to connect people to the BBS Family Association Instagram page which is HERE. Because yes, today is Rare Disease Awareness day. And any type of awareness about syndromes is incredibly helpful because: Awareness = Care = HOPE. More awareness brings more doctors and researchers to the scene. Connects…

Sometimes when I’m reading (or listening to) a good book I slow way down at the end. I’m just not quite ready for it to end. I situate my time and myself just so so that I can fully take in all the culminating events as it wraps up. I…

You know that saying “when one door closes, another one opens”? That happened for us last week. But let me leave you hanging for a minute on that newly open door to announce that February is Retinitis Pigmentosa Awareness month. What in Heaven’s name is retinitis pigmentosa you might ask?…

Lucy told me a month or so ago that her biggest regret from junior high was that she didn’t try out for the basketball team. I somehow hoped she had forgotten about that. Which makes me feel awful because what kind of mom wants her child to forget about a…

I was worried about Lucy so I picked her up to take her for a pick-me-up lunch date (haven’t done this in way too long). Claire found out about and begged to come too, so I lucked out with both girls in the middle of the day. We ended up…