Hope and Hopelessness at a BBS Conference in Our Old Stomping Grounds
Over the weekend Dave and I attended the Bardet-Biedl Syndrome conference in Washington DC (Lucy’s BBS). It just so happens that DC is our old stomping grounds. Yes, we lived…
This section includes posts about parenting a child with special needs, including our journey with diagnosis, daily life, and growing independence. This is a challenging and often lonely task, yet there is so much growth in the process! For a more guided look at this journey, visit my page all about parenting a child with special needs.
Over the weekend Dave and I attended the Bardet-Biedl Syndrome conference in Washington DC (Lucy’s BBS). It just so happens that DC is our old stomping grounds. Yes, we lived…
We are already half-way through BYU summer school for Lucy and it’s been a rollercoaster ride for us for sure. But I want to take a minute to talk about…
You know when little ideas create a spark of possibility in your mind? And then it takes root and you realize that’s a really good idea? That’s what happened in…
Let’s take a minute to talk about the short time we got to have Lucy home this summer. The “three musketeers” reunited. Because I want to hold onto it in…
Our first year of parenting a college student with low vision has been a journey for us all. And it is worth remembering. It’s been a year of extraordinary effort…
Watching your child with special needs step into adulthood can be quite an emotional ride. It brings a unique mix of pride, worry, and wonder. Lucy’s first college spring break…
People have asked for an update on Lucy. For anyone new needing an introduction, Lucy is my daughter, and also an incredible college student with low vision who is doing…
Preparing a child for college is a big step for any parent. Preparing a child with special needs can feel like stepping into completely unknown territory. As we went through…
As Lucy prepares to leave for college, I find myself holding a mix of emotions I can barely put into words. There is so much going on in my heart…