…here we go a little closer:
…and this is where Lu, but the time we got to the third ultrasound of the day, was starting to get frustrated and Dave had her talking on her banana phone to the purple and red zebra at the zoo about her day.
Oh, and then there was a good long wait in the cardiologist’s office while they read all the scans they had:
Yeah, I’m pretty sure Lu and I were both pretty lucky to have Dave around.
We learned so much and met so many wonderful people. I have written all the details from my notes over on the “I Love Lucy” blog HERE and HERE and HERE.
On our last night we had a nice dinner with the other families who were also there in Wisconsin with their BBS kids.
Brenda and Nell and a couple other women made it up sooooo nice for us all, complete with Halloween inspired food.
Lucy had fun meeting new friends. These girls are the daughters of one of the ladies helping to make this clinic work.
I’ll add pictures of the BBS kids who were there when I get them, hopefully soon.
Here are Nell and Brenda who put on this great dinner:
After the dinner we headed to Lucy’s sleep study.
Dave and I were cracking up with how many wires they attached to this girl!!
…and with how calm she was through the whole process (her new “Busy Town” DVD worked magic I tell you!)
This is how she went to sleep:
And woke up all refreshed for some more appointments the next day including Physical Therapy:
Some art work during Gastrointestinal appointment…
…and leading into her Endocrinology appointment as well.
All the technical information and much more detail on all that day entailed over HERE on the I Love Lucy blog.
We were in a huge rush there at the end to run pick up her new orthotic and say our goodbyes before we ran to catch our flight, but were able to get a picture with these wonderful mothers before we left:
Until then, how grateful we are to have all this information under our belts, and a renewed drive to help Lucy and all those families affected by BBS.
We drove through the beauty of that gorgeous fall weather mixed with rain back to catch our flight in Minneapolis with hearts full of gratitude.
I wish any pictures could do that glory justice.
Claire was so excited to see Lu when we got home she could hardly stand it.
They spent an hour talking and playing with all Lucy’s new loot until we scooped Lu up and tucked her in bed after a very eventful week.
Wow what a great guy you have. He seems like a great husband and great Dad.
I'm so proud of Lucy for being so calm during her sleep study! I've done my own and it's hard to sit still while someone glues stuff to your face and head!
You guys are an inspiration.
Lu is so blessed to have BOTH of you as parents, so involved and supportive!!! Wisconsin sure does look beautiful in the Fall, I'll have to put it on my bucket-list of places to visit!
p.s. My son is diabetic, and there is nothing better than getting together with parents who are in the same boat as you, you have an immediate connection and understanding of one another, glad you had that opportunity!
She is lucky to be so loved. 🙂 and those pictures above of her smiling as happy as can be made me happy. She is definitely an angel!
such GREAT info. Thanks for sharing. How grateful we are for all those people who organized this. What a wonder! That hug at the end is priceless. So is Lucy's art. How lucky is Lucy to have you and Dave? Blessed beyond words!
You are such a special family. Lucy is a brave girl!
A couple of random things: the Haws were in my ward when I lived in Gilbert years ago. It looks like he's gone on (and continues) to do some incredible work.
Also, I came across the Daughters of God Mormon Message and was so excited when I saw a gorgeous flash of you with your camera. Such a powerful video.
I can't help but admire you and your husband for being such incredibly devoted parents. Lucy is a lucky girl!