I just got back from London last night. My Mom and I went to attend a conference there for Lucy’s Bardet-Biedl Syndrome. We learned SO much and met some of the kindest people. We also got to go visit my sister who lives in London for a whirlwind visit filled with planes, trains and automobiles….
This is how Lucy colors lately:When I see things like this it makes my heart clinch up tight. It makes me sick to my stomach when harsh reality hits that she needs to be that close to her coloring book to see the details of what she’s doing. It makes the idea of vision loss…
Is it just me or does one of the kids look like they’re glowing in this performance? Yeah, over there on the top right?Yep, that’s my girl.Man oh man was she ever excited about this one! It seems like a good time to have Claire be our “star of the month” since she recently got…