a day in the life of Wisconsin doctor visits
Ok, really “two days” in the life, but from the time we leave to the time we get back it really is close to 24 hours. We do these visits…
some heroes, a clinical trial and a suntan
I’m so grateful for all the things available in this day and age for a kid with a syndrome. (If you are new to this blog, I have written about…
the buck stops here
Sometimes I think it’s funny how we smile for pictures even when our hearts are breaking. I wonder if everyone does that or if it was just me and Dave…
the Bubble Run and new BBS friends for Lucy
Two different stories merge into one right here. At first they may not seem BBS-friend related but just wait for it 🙂 First: Last year we had a pretty spectacular…
music that moves me
Elle’s friend is an exceptionally incredible singer. I’m telling you, she’s so good that pretty much every time I hear her I’m brought to tears. She has recently teamed…
Braille progress
Last month I got to go visit with Lucy’s Braille teacher at the school. We had only emailed up until then and from the first email I knew that I…
some BBS friends, EFY pick-up and the long road home
Over the years since Lucy got her BBS diagnosis Dave and I have had opportunities to go to a few BBS conferences where we have met so many people we…
bring light
Today I’m deep into the task of updating “I Love Lucy Project” information in preparation for the next annual Turkey Trot coming up (click here to see what happened last…