Before all these details fade from my memory forever, let’s talk about how to make the most of three days in Rome. Because in our opinion, after so much research and what felt like blood and sweat and tears, we kinda nailed it. Ha! As a refresher, since it’s taken me a while to get…
This was perhaps one of the most exciting thing for the girls on this section of this trip. A great way to see Rome — a vespa tour. Grace, our Rome tour guide had really pushed for this one. And oh, these girls were pretty filled with anticipation for that thing. Now, let’s get this…
Tomorrow I’m working to wrap up documenting the tail-end of our MFMP trip. The part where we visited ROME. I kind of dropped the ball as things ramped up to get Claire off on her mission. But oh how I want to remember all these things we experienced together before the details fade with the…
Just wanted to connect people to the BBS Family Association Instagram page which is HERE. Because yes, today is Rare Disease Awareness day. And any type of awareness about syndromes is incredibly helpful because: Awareness = Care = HOPE. More awareness brings more doctors and researchers to the scene. Connects people. And yes, makes you…
When Lucy’s choir teacher asked me a few weeks ago to tell him more about what’s going on with Lucy, I realized we needed a little teacher meeting. Knowledge is power, and I realized none of her teachers really knew what was going on with this girl. So her “helper” at school set up a…
After we left Utah for the first part of spring break, we headed to Iowa. Because there is some pretty incredible vision restoration research going on there. Along with some old and new friends. As you might remember, our friends are mission presidents there. They are some of Lucy’s heroes (I’ll get to that). But…
I feel compelled to post about Lucy’s first date and how I feel about it today. Because her second date is tonight, and it’s therapeutic for me to write down thoughts on the first “wave” before the second “wave” comes crashing on in. You see, Lucy went on her “day-date” for MORP (casual girls’ choice…
Since my niece is trying to help me get this blog printed for a family record (slowly but surely!) I’m trying to get back to my “little things” posts. Plus, also I love to look back on a month. I figured I may as well start where I am for now…with December all wrapped up….
I have so much gratitude for “bubbles of love.” And that we can pray for those bubbles to encapsulate our children when they are struggling. The other day, after a particularly difficult few days for Lucy, we huddled together for a little prayer before she left for school. She melted into me like she does…