BBS conference and my kind of rock stars
At the end of June I sat for three days in this room (and in some break-out rooms) with these wonderful people: …listening to doctors and researchers explain slide after…
Friday Q & A — I Love Lucy project update and the upcoming BBS conference
…a day late… I was wondering if there was an update on the donations for the I love Lucy project that you initiated last fall? Somehow I couldn’t find it…
Lucy’s Braille
We have lots of Braille going on around here these days. Lucy has been learning it in school for the last couple years. You know how I said I…
Lucy’s new prescription
A couple weeks ago Lu and I paid a visit to the eye doctor. I watched that girl interact with the amazing dr. assistant who was initializing the visit and…
Lucy’s morning walks
Following the BBS conference Dave and I came home motivated to help Lucy get a little more exercise. She loves a good schedule, so we wrote it out (back here)…
BBS conference at Duke University
So Dave and I went on a “date” to the BBS Conference at Duke University in June. It was kind of a pre-anniversary, pre-father’s day thing. (For new readers, our…
England — Part 2 (the BBS Conference)
So the reason we went to England in the first place was so that we could attend the BBS conference in Northampton. The minute we found out about Lucy’s syndrome…
new information on vision restoration
My dear Mom designated herself to became “the researcher” on everything we can possibly do to help Lucy ever since we got her diagnosis two years ago. She hears things,…
Bardet-Biedl conference & Duke University
Speaking of good doctors (in the post before last), I never wrote about the Bardet-Biedl conference we went to back in June. And that’s no good, because it was really…