I am so very grateful for the blog reader who shared this book recommendation with me:
I don’t know if it would hold the same value to everyone else, but to me, it was priceless. (lots of reviews HERE)
It was such a beautiful memoir of a woman who didn’t let her disabilities get in the way of living her life to the fullest, and it left me with such a heart full of gratitude for the “vision” it gave me into Haben’s world, and in turn, into Lucy’s world.
I am often sent inspirational things about people who conquer unimaginable things despite vision loss. I’m so thankful for those who take the time to send those things, they are inspiring.
It is incredible what the human soul can do.
But sometimes rather than giving me hope for the future those inspirational stories make me feel a sense of loss. I know. Strange. I guess those things just make me wonder if Lucy will find her “thing” that helps her overcome looming obstacles? Will she reach a time where she’s at peace with her syndrome? (She has a lot of sorrow, and has a tough time accepting any help.) Will she ever be proud of her story? And is it ok if she isn’t? Oh don’t get me wrong, she is strong. And she is a spitfire. And she is going places in life. But sometimes it’s hard for her to see that. Every situation is just so different. Everyone has different temperaments, different abilities, different frustration thresholds. And the unknown is kind of scary.
Sometimes it’s hard to think about the future. So sometimes we don’t.
But this book was so powerful to me because it gave me insight into how Lucy must feel as her world darkens around her. Sure, Haben has deafness to add to the vision loss, but for some reason it was so helpful to me to read how a cafeteria feels when you are losing your vision. How it feels to have parents who are so worried about your every move, so worried you won’t be safe because of your disability. It gave me an insight into the incredible technologies that keep advancing to help the blind, and HOPE that maybe some day Lucy will accept how much it can help her. It gave me hope that Lucy will find friends with some of the same disabilities some day, and that they will be strong supports for one another. That she will feel a more powerful sense of belonging. That maybe she will accept the power of Braille and how it can change her life.
It helped me understand so much better where Lucy is coming from. Why she is closed in sometimes, how easy it would be to be skeptical of things in a world where you really can’t see well, but you’re trying oh so hard to make others believe that you can. Why she is so particular about how things are placed, and how things feel.
I was grateful for how Haben went into how sighted, hearing people can interpret all kinds of environmental factors at the same time, and it is so difficult if you have a loss of one of your senses (let alone two!).
It was so interesting (and relate-able) to read that so many blind children don’t do chores because their parents don’t believe they can do them (we are running into this problem around here).
The importance of Braille. Did you know only 10% of blind people know how to read Braille? I hope Lucy will embrace it better some day. There are so many assisted technologies, but Braille can open so many worlds.
“Sighted or blind, deaf or hearing, each of us holds just the tiniest part of the world’s wisdom.” So we need to learn from each other. It made me so grateful for the wisdom that Lucy holds, and that it is teaching me every day.
So I told her so (to add to all the other times I’ve told her so). And she listened relatively intently to all the stories I shared from the book.
There is nothing like getting a front row seat into where someone else is coming from. Especially someone like this for me. So Thank you, dear Haben, for writing a book that helped this one mother over in the middle of the desert to have something to hold onto right when she really needed it.
And thank you, dear blog reader, for that great recommendation.